Hearing Care and Management Priority Among Parents of Children with Down Syndrome: A Grounded Theory
Document Type
Article
Journal/Book Title/Conference
International Journal of Audiology
Publication Date
2020
First Page
1
Last Page
36
Abstract
Objective: This study qualitatively explored the factors that influence how parents of children who are Deaf or hard-of-hearing with Down syndrome prioritize hearing care and management and developed an associated theory to explain that priority.
Design: Grounded theory was used for the purposes of this qualitative study. Data were collected using in-depth interviews which were analyzed using a three-tiered qualitative coding process.
Study Sample: Eighteen mothers of children who are Deaf or hard-of-hearing with Down syndrome participated in this study.
Results: The higher the extent of engaged professional support, perception of benefit for child, parent activation, and family engagement, the higher the priority for hearing care and management will likely be among parents of children who are Deaf or hard-of-hearing with Down syndrome.
Conclusions: Understanding how parents of children who are Deaf or hard-of-hearing with Down syndrome decide to prioritize hearing care and management has implications for how hearing health providers and others provide care to parents to enhance priority for hearing-related needs.
Recommended Citation
Whicker, J.J., Munoz, K., Pearson, N.J., Landon, T.J., Nelson, L.H., White, K.R., & Twohig, M.P. (in press). Hearing care and management priority among parents of children with Down syndrome: A grounded theory. International Journal of Audiology.
Comments
This is an Accepted Manuscript of an article published by Taylor & Francis in the International Journal of Audiology on 2020.