Abstract
Background: Community-based participatory research (CBPR) is an excellent fit for understanding and addressing the unique and diverse needs of deaf or hard-of-hearing (DHH) children and their families.
Objectives: We describe lessons learned from a capacity building project initiating an academic-community partnership between a multidisciplinary research team and a small group of parents of DHH children. Trainings and focus group style discussions created a research agenda reflective of families’ priorities.
Methods: Processes are described related to the development and composition of a Family Advisory Council, training topics and methods, the process for generating and prioritizing topics, and evaluation procedures.
Lessons learned: Takeaways relate to the importance of flexibility, relationship building, CBPR mentoring, and navigating institutional barriers.
Conclusions: CPBR is an appropriate and effective framework for engaging families with DHH children in the research process.
Recommended Citation
Davenport, C. A. Findlen, U. M. McAlearney, A. S. & Vaughn, L. (2025). Developing a research agenda in partnership with parents of deaf/hard-of-hearing children. Journal of Early Hearing Detection and Intervention, 10(1), 9-15. DOI: https://doi.org/10.59620/2381-2362.1237
Retrieved from https://digitalcommons.usu.edu/jehdi/vol10/iss1/2
